This is what they had to say:
Motor neurone disease (MND) is a fatal, rapidly progressing neurological condition affecting up to 5,000 adults in the UK at any one time. The disease causes messages from nerves (motor neurones) in the brain and spinal cord that control movement to gradually stop reaching the muscles, leading them to weaken, stiffen and waste.
The result is that people become locked in a failing body, unable to move, talk and eventually breathe. Some may experience changes in thinking and behaviour, with a proportion experiencing a rare form of dementia. MND does not usually affect senses such as sight, hearing and touch.
MND kills a third of people within a year and more than half within two years of diagnosis. It affects people from all backgrounds and a person’s lifetime risk of developing MND around 1 in 300. Today six people will be diagnosed and six will die from MND. There is no cure.
Occupational therapists play a vital role in supporting people with the disease to maximise their quality of life by supporting them to adapt to their changing symptoms and continue to participate in occupations that are important to them. However, supporting people with complex and changing needs, alongside a terminal diagnosis can prove challenging for all involved.
This #OTalk is being hosted by the MND Association Education and Information Team, and will focus on the role of occupational therapy in MND and the challenges the disease can raise for health and social care professionals. We are really looking forward to hearing about your experiences of working with the disease and creative solutions to the challenges of MND.
Some questions to get you thinking in preparation for the chat:
- What can Occupational Therapists do to help pain management with people living with MND?
- What can Occupational Therapists do to help prepare people living with MND for the types of equipment they may need in the future ?
- What is the Occupational Therapists role in postural management in MND?
- How can Occupational Therapists support social inclusion for people living with MND and their families and carers?
- Do Occupational Therapists manage fatigue in MND? (I think people miss this in MND and usually associate it with MS)
- Do Occupational Therapists suffer compassion fatigue when working with this client group?
119 Avg Tweets/Hour
6 Avg Tweets/Participant